I'd like to share two tales of dermatitis herpetiformus (DH) that I've heard over the past months.
Yes, it's true: Even doctors--and even dermatologists--have trouble getting a DH diagnosis!
An internist who was experiencing an itchy skin rash consulted several doctors before getting a DH diagnosis. A dermatologist(!) who was experiencing an itchy skin rash consulted several doctors before getting a DH diagnosis.
Perhaps the most prominent DH specialist in the United States is Dr. John Zone of the University of Utah, which is located somewhere east of New York City. Here are patient and doctor pages from the Celiac Disease Center of Columbia University, which is located in New York City.
And here is the DH page of the Gluten Intolerance Group (GIG).