Showing posts with label UMCCR. Show all posts
Showing posts with label UMCCR. Show all posts

Thursday, June 04, 2009

Vinegar Revisited. Again.

Distilled Vinegars are Gluten-Free, Just Check Others

The dietitian Tricia Thompson, who did the research that measured significant wheat contamination in oat brands including McCann's, recently collaborated with other gluten-aware dietitians in addressing concerns about the possibility of gluten in vinegar.

Their findings—summarized in Tricia's blog post, "Vinegar: When Is It Gluten-Free?"—were generally consistent with research published in Gluten-Free Living suggesting that the vast majority of common vinegars are gluten-free.

The main points:
  • Distilled vinegar is gluten-free, no matter what the source material may be, because (the ancient and medically reliable process of) distillation separates all proteins from the final product.
  • "Vinegar" simply listed as an ingredient can be considered safe—made from apples.
  • Check non-distilled and flavored vinegars. The most common non-distilled vinegar that would be of concern is malt vinegar; some Asian black rice vinegars might also merit concern.
  • The contributors to this recent statement are all dietitians notable for their expertise concerning celiac disease: In addition to Thompson, they include Cynthia Kupper of GIG, Melinda Dennis of Boston's Celiac Center at Beth Israel Deaconess Medical Center (CCBIDMC), author Mary K. Sharrett of Nationwide Children's Hospital of Ohio (NCHO), Anne Lee (formerly of the Celiac Disease Center at Columbia University--CDCCU), and Pam Cureton of the University of Maryland Center for Celiac Research (UMCCR).

    Monday, May 04, 2009

    On Sale Now: The G Free Diet

    Curious about Going Gluten-Free? Get Tested First!

    Elisabeth Hasselbeck appeared on Good Morning America today to promote her new book The G Free Diet. At the GMA website you can see the segment, read an excerpt from her book, and find a link to the book's website, www.gfreediet.com.

    I'm glad that Elisabeth is raising awareness of celiac disease, which is still grossly underdiagnosed, and it's good to see that her story might alert people diagnosed with IBS that they might actually have celiac disease—but I hope that people do not go on a gluten-free diet before getting tested for the condition. I try to avoid shouting on this blog, but here goes: GET TESTED FIRST!

    As I'm sure Dr. Peter Green (Elisabeth's doctor and mine) would be glad to tell you, getting screened for celiac disease is a simple and relatively inexpensive process that should be done in coordination with an informed physician. The first step is to get a series of blood tests while gluten is still in your diet. You can find the list of the blood tests at the website of the Celiac Disease Center of Columbia University (CDCCU), where Dr. Green is the director as well as the founder. Based on the results of the tests, the physician may suggest proceeding with an endoscopic biopsy to look for gluten-related intestinal damage, which is the gold standard for a diagnosis.

    Speaking of gold, I want to emphasize that the time when you're considering trying out a gluten-free diet is the golden moment for being screened and tested for celiac disease (which is, strictly speaking, not an allergy). Instead of going on the diet right away, make that appointment with your physician and discuss taking the blood tests. After the results come in, you can talk about the next move. (The biopsy also yields the best results while you're still consuming gluten.) After you get the test results, you can still choose to eliminate gluten from your diet, but at least you'll have a baseline that doctors can refer to. If your tests turn out to be positive, they can be useful in monitoring the success of your diet, getting family members tested as well, and even getting federal tax breaks for your expensive gluten-free food!

    Want more info? Try the National Foundation for Celiac Awareness (NFCA), the Celiac Disease Foundation (CDF), the William K. Warren Medical Research Center for Celiac Disease (WCCD), the Celiac Disease Center at Beth Israel Deaconess Medical Center (CDCBI), the University of Maryland Center for Celiac Research (UMCCR), and Mayo Clinic.

    Also, be aware that Dr. Green has co-written his own book, Celiac Disease: A Hidden Epidemic. Don't expect to read about Elisabeth in that book, but do expect to spend some time in the company of one of the world's experts on the subject.

    Here you can see Elisabeth and Dr. Green on The View, back in March 2007.



    Source (7:12)

    Thanks to Erin at the New York City Celiac Disease Meetup Group (NYCCDMG) for the lead.

    Saturday, December 06, 2008

    More Extreme Fundraising!

    What does one have to do to raise money (and awareness) in support of a gluten-free cause?

    We've seen a walk on the Appalachian Trail.

    We've seen a swim through the waters off Alcatraz.

    And now Michele Wallick (who has written for Gluten-Free Living) and her husband Greg, of GF Adventures, are sailing 7,000 nautical miles across the Atlantic from Cape Town, South Africa to the Brazilian islands of Fernando de Noronha.

    They hope to raise $14,000 for the Gluten Intolerance Group (GIG) and the University of Maryland's Center for Celiac Research (UMCCR) while raising awareness that an estimated 2,700,000 Americans with celiac disease remain undiagnosed.

    Well, they certainly caught my attention. I wish them well!

    Do you think sailing is a breeze? Consider this video, and remember that you can make donations here!



    Source (6:06)

    Monday, July 28, 2008

    BLOOD FOR BASEBALL!

    Not As Creepy As It Sounds

    Celiac disease does not disqualify people from donating blood. If you don't believe me, check out the FAQs at the University of Maryland Center for Celiac Research (UMCCR) and Nancy Lapid of About.com.

    This Wednesday from 10am to 5pm you can give blood at the Diamond Club of Shea Stadium and get something in return: two tickets to a Mets game in August!
    The New York Mets and the New York Blood Center will host their annual in-season Blood Drive on Wednesday, July 30, in the Diamond Club of Shea Stadium from 10 a.m. - 5 p.m.

    Each donor will receive a pair of tickets to a select Mets 2008 home game in August, the Mets final season at Shea.
    As Nancy suggests, bring your own drink and snack—just to be on the safe side.