CeliActivism: Health Care Reform

The Obama transition team welcomes input

During the second half of this month, Tom Daschle and the Obama transition team will welcome public input on its health care policy. Much of the attention at the forthcoming health care community discussions will probably be on how more people (especially children) can receive affordable health insurance, but this might be an ideal time to become more aggressive about finding ways to heighten awareness of celiac disease.

As you might recall, Barack Obama supports preventative medicine and judicious government spending. I would imagine that he is also looking to create "success stories" during the initial phase of his presidency.

I think that a celiac disease awareness policy would achieve those goals because

* More than 2,000,000 Americans of all ages (about one percent of the population) are estimated to have celiac disease that is undiagnosed or misdiagnosed even though they may be experiencing symptoms.

* Diagnosing and treating celiac disease in the undiagnosed children can help them develop normally, avoiding illnesses such as osteoporosis.

* Diagnosing and treating celiac disease in the undiagnosed general population can also prove beneficial, fending off osteoporosis as well as chronic fatigue, thyroid disease, and some forms of cancer, along with many other health issues.

* Decreasing the "time to diagnosis" from its current length of about 10 years can eliminate unnecessary tests and medical visits.

* Celiac disease can be initially screened through simple and relatively inexpensive blood tests.

* Celiac disease is treatable by diet, not medication or operations or procedures.

* The Obama administration does not need to initiate an awareness program from scratch. It can shape a policy that is informed by the examples of other countries, especially those in Europe.

* By raising awareness at a point in time when the vast majority of people with celiac disease are unidentified, the Obama administration can measurably accelerate the rate of diagnosis—in other words, it can point to results.

I hope that this type of message makes its way to people who can see the reasoning in it and take action to make it happen. If you agree, please think of how you can help to get the message across, whether it's through a community health care discussion, contact with sympathetic political figures such as Kemp Hannon, Nita Lowey, and Hillary Clinton, or contact with an advocacy group such as the American Celiac Disease Alliance (ACDA) and National Foundation for Celiac Awareness (NFCA).

Gluten-Free, Politically

It's a very good morning over at Gluten-Free NYC, filled with the promise of positive change—and not just because of enthusiasm over Barack Obama's victory. As the nation moves toward a fresh start and the possibility of more unity, it strikes GFNYC that a health policy that raises public awareness of celiac disease is something that both Democrats and Republicans can agree upon.

As you might recall, GFNYC supported Barack Obama but noted that both of the big party presidential tickets could offer improvements for people with celiac disease. Gluten Free Blog expressed a similar position in favor of Obama.

As John McCain and Sarah Palin return to their regular jobs as senator and governor, they can still follow through on their concern for "special needs" households, including those affected by celiac disease and associated conditions, including Down Syndrome and, possibly, autism as it is currently being diagnosed.

Palin in particular should also be aware that millions of Americans may still be undiagnosed with celiac disease, as her prominent supporter Jane Swift and her outspoken advocate Elisabeth Hasselbeck are known to have the condition. So perhaps the Anchorage GIG group can do something with that.

Closer to home, Kemp Hannon retained his seat in the New York State Senate. He has recognized that early screening for celiac disease is an idea worth consideration.

As far as the national government is concerned, GFNYC notes that Representative Nita Lowey, Senator James Inhofe, and Senator Ben Nelson all remain in office. They might not agree on much, but each has advocated on behalf of people with celiac disease.

Also remaining in office is Senator Hillary Clinton, an advocate of universal health care whose husband Bill recently talked up the value of "gluten-free" cassava.

Presiding over all of these politicians will be Barack Obama, a supporter of preventive medicine and universal health care for children who recognizes that some government programs are worth additional funding even during budgetary crises. GFNYC hopes that the FDA's ability to enforce food labeling accuracy will improve under his administration.

Celiac disease might not mean much to the general population in the great scheme of things. But sensible, progressive policies regarding celiac disease should find a place on the agenda as American leaders search for ways to build unity and consensus.