Thursday, November 27, 2008


The American Celiac Disease Alliance (ACDA) recently sent this letter to The Chicago Tribune in response to the paper's articles on poor food labeling practices.
Dear Chicago Tribune Editor:

On behalf of the American Celiac Disease Alliance (ACDA) and the thousands of Americans now affected by Celiac Disease, thank you for publishing the two-part investigative series on food labeling and food manufacturing oversight entitled Allergy Threat: A Tribune Investigation" (Nov. 21 and Nov 23, 2008).

Mr. Roe's thorough and well researched article exposes the serious and sometimes life-threatening problems that can be caused by mislabeled food products. His article paints a compelling and very personal portrait of the challenges people with Celiac Disease, food allergies and other health concerns face each and every time they shop the grocery store aisles.

Celiac Disease is the world=92s most common autoimmune disease. Although most have yet to be diagnosed, it is estimated that at least 1% of the U.S. population has this inherited disease. Today, the only known treatment is strict adherence to a gluten-free diet for life.

On behalf of those living with Celiac Disease, the ACDA applauds the Chicago Tribune's efforts to raise awareness of the issue and to demand stricter oversight of food labeling and enforcement by the U.S. Food and Drug Administration (FDA). The Food Allergen Labeling and Consumer Protection Act of 2004 (FALCPA) was an important first step in protecting celiac, gluten intolerant and food-allergic consumers. Mr. Roe's article clearly indicates that more stringent oversight is necessary. We agree.

In January 2007, the FDA proposed a standard for "gluten-free" labeling. Under its proposal the maximum threshold level for gluten would be set at 20 parts per million (ppm). When finalized these regulations will help to ensure that individuals with Celiac Disease are not misled by incorrect food labels and that they have truthful, accurate and easily accessible information on processed food labels.

Until this regulation goes into effect and FDA oversight is strengthened, food-sensitive consumers will be left wondering what products they and their families can safely consume. In the case of those with celiac disease, they will also be questioning the safety of adhering to the gluten-free diet, their only medical treatment.

Andrea Levario, Executive Director
American Celiac Disease Alliance (ACDA)
Photo: David Marc Fischer


Michael Thorn said...

It's great to see the ACDA step up and be put on record about this extremely disturbing and serious issue.
The question is..why are the other CD organizations in the U.S. so silent?

David Marc Fischer said...

The ACDA is a kind of umbrella group, so a bunch of CD organizations are represented by it. However, judging from the CSA website, it seems that it has been silent so far.

GF John said...

Hello. I am John Libonati, the incoming CSA-USA President Elect. CSA-USA has been working hard behind the scenes. CSA is the group that actually had the foods tested by the University of Nebraska and then worked with the author and the family affected by the contamination and lodged the formal complaint with the USDA. Unfortunately, the author never mentioned CSA or its work in the follow up article...CSA is working to improve its Public Relations. See letter from Executive Director as follows.

"When the first article appeared, CSA responded immediately to the author with a copy to the mother whose child had an allergic response. Early in the spring, the mother referenced in the article and the food item in question prompted a CSA investigation and formal complaint to the USDA. This is the same product referenced in my column in this year’s #3 Lifeline. Last month we received a letter from USDA that the investigation is complete. The company in question is only the second company I have worked with that did not want to find and fix the problems leading to mislabeling."

Celiacs Helping Celiacs

Mary Schluckebier

Executive Director

Celiac Sprue Association

PO Box 31700, Omaha, NE 68131-0700

Toll Free 877-CSA-4-CSA (1-877-272-4272) Ext 1006

Cell 402-672-4892